We need to talk about emergency evacuation for the disabled
I recently got a new manager at work, which has improved my quality of life as a disabled worker. This change also instigated the creation of an emergency evacuation plan for me, and…
Shaniqua’s Sickle Chronicles
— Mary Shaniqua
Mary Shaniqua is a sickle cell patient (HbSS) living in the United Kingdom. She was diagnosed with sickle cell at 18 months old and uses “Shaniqua’s Sickle Chronicles” to narrate her experiences, to educate healthcare professionals, as well as empower and embolden other sickle cell patients. Mary Shaniqua is committed to raising awareness of sickle cell and its impact, with an aim to educate non-haematological specialist healthcare workers and the general public more widely on the life of a sickle cell patient.
Featured Post
How to be an ally to those of us with sickle cell disease
Sickle cell disease is highly misunderstood, and our patient community is acutely aware of this. One of the key lessons I’ve learned throughout my journey with this illness is the importance of…
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Observing Good Friday and Easter from a sickle cell perspective
Today is Good Friday, which in my faith marks the crucifixion of Jesus. The Bible narrates that Jesus was crucified, remained dead for three days, and rose to life on the third day. The…
How to help a loved one with sickle cell disease
How can you help a loved one with sickle cell disease? As a patient, I’m asked this question frequently, especially when I’m unwell. The reality is that there’s no single grandiose action that…
A story from my life about why disability representation matters
I graduated from college in 2010. Fortunately for me, I was able to secure a job before I had even finished school. In August of that year, after finishing my final exams, submitting my…
What I’ve learned about traveling by plane with supplemental oxygen
I’ve shared some of the hurdles I face when traveling abroad as someone with sickle cell disease. I now have something else to add to the list. I recently returned home to…
What Others Need to Understand About Sickle Cell Pain Crises
In many of my columns I’ve referred to suffering a sickle cell crisis. But what does that mean? Sickle cell disease is a disorder that affects the red blood cells. These cells…
The National Health Service Faces a Crisis, as Does British Society
Last month, I suffered a sickle cell crisis. After battling the pain for four days, I decided to go into the hospital on Dec. 12. Unfortunately, that was a challenge. The first hurdle…
Reflecting on Another Year With Sickle Cell Disease
For me, 2022 has just been OK in terms of sickle cell disease. I’m still not where I’d like to be health-wise, but I’m getting closer. One thing I’d really like to celebrate…
Living With Sickle Cell Disease Is a Never-ending Battle
Earlier this week, I received an email that left me in tears. Its content is unimportant. But what I can share is that it was disappointing and related to things I require to manage…
How to Prepare Children With Sickle Cell Disease for Adulthood
When children become adults, they must transition from pediatric to adult healthcare services. Transition programs are particularly important for helping patients with chronic conditions navigate this switch. A good program ensures patients are…
How to Prepare for Holiday Travel With Sickle Cell Anemia
Imagine: You’ve had a long and stressful few months, you’ve accrued some leave at work, and you’ve saved up some money, so you decide to take a holiday. You already have a bucket list…
How a Port-a-Cath Makes My Blood Tests and Transfusions Easier
It had been roughly four weeks since my port-a-cath was inserted, and I was due for my next blood transfusion. However, that transfusion would be different than previous ones — it was…
