I’ve previously written about the difficulties I’ve sometimes faced when trying to get my prescriptions filled to treat sickle cell disease. In a stroke of luck about a year ago, I found a…
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Health-related stigma, as I discussed in my last column, is not the only stigma that afflicts those with sickle cell disease. There’s another stigma attached to it, one more localized, that can…
Living with sickle cell disease means dealing with constant fatigue and painful vaso-occlusive crises. These symptoms can impede on a normal life with wide-reaching implications, such as limiting social or work capabilities.
In a previous column, I gave a brief overview of my family’s experience with sickle cell disease. Both my parents have the sickle cell trait, and of their four children, I’m…
In recent columns, I have written about why knowing your genotype is imperative when planning a family, as well as the steps to take to avoid having children with sickle cell disease.
Living with sickle cell disease is no easy feat. At 32, I still struggle to understand my body and live as freely as I’d like. Because it’s within our power to prevent children…
If you haven’t already, I would recommend you get your genotype tested. Sickle cell is an inherited disease. This means if both parents carry a sickle gene, there is a chance the baby…
Last weekend, I had plans to go to brunch with a group of friends I hadn’t seen in a while. We planned it quite a few weeks in advance, and I was really looking…
In my last column, I wrote about finally being discharged after a lengthy hospitalization. Once I got home, I rested for about a week and then decided to return to work. Maintaining…
In my last column, I shared that I was in the hospital due to a sickle cell crisis. I have finally been discharged, thank God. I contracted an infection at the beginning…
It’s been several weeks since my last column, because I was unfortunately hospitalized at the beginning of February. I was hoping to have been discharged by now, but sadly I’m still here. Last month,…
I spent much of the fall of 2019 in the hospital due to a sickle cell crisis. It became so severe that it affected my organ function and triggered a severe case…
Happy New Year! It’s 2022, and my New Year’s resolution is the same as always: to experience and maintain good health. I’m not completely naive. I’m acutely aware of how sickle cell disease works,…
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