Shaniqua’s Sickle Chronicles
— Mary Shaniqua

Living with sickle cell disease is no easy feat. At 32, I still struggle to understand my body and live as freely as I’d like. Because it’s within our power to prevent children from experiencing this horrible, debilitating disease, I believe in doing everything possible to avoid passing it…

If you haven’t already, I would recommend you get your genotype tested. Sickle cell is an inherited disease. This means if both parents carry a sickle gene, there is a chance the baby can have sickle cell disease. If both parents have the sickle cell trait, there is…

Last weekend, I had plans to go to brunch with a group of friends I hadn’t seen in a while. We planned it quite a few weeks in advance, and I was really looking forward to being out socially and catching up with them. But on the morning of the…

In my last column, I wrote about finally being discharged after a lengthy hospitalization. Once I got home, I rested for about a week and then decided to return to work. Maintaining a successful, full-time career while having a disability like sickle cell disease requires good decision-making…

In my last column, I shared that I was in the hospital due to a sickle cell crisis. I have finally been discharged, thank God. I contracted an infection at the beginning of February that resulted in a crisis. I was hospitalized for five weeks and in extreme…

It’s been several weeks since my last column, because I was unfortunately hospitalized at the beginning of February. I was hoping to have been discharged by now, but sadly I’m still here. Last month, I contracted an infection that resulted in some horrible symptoms. I won’t go into detail, but…

I spent much of the fall of 2019 in the hospital due to a sickle cell crisis. It became so severe that it affected my organ function and triggered a severe case of avascular necrosis. I was hospitalized on Aug. 28 of that year, and by the…

Happy New Year! It’s 2022, and my New Year’s resolution is the same as always: to experience and maintain good health. I’m not completely naive. I’m acutely aware of how sickle cell disease works, and I know I can’t predict many of my health hurdles. Thus, it’s almost impossible for…

I have been experiencing a lot of pain lately due to sickle cell crises. I previously wrote that my crises have started to correlate with my menstrual cycle, but I’m now experiencing them daily. Admittedly, I’m not experiencing the worst pain ever, as I’ve been able to manage…

Winter has finally arrived here in the U.K.  I really dislike the winter, in case you didn’t know. One of my biggest sickle cell disease crisis triggers is cold weather. Although sickle cell patients have different pain crisis triggers, almost all sickle cell patients are triggered by cold…

Last Monday, I awoke to a flurry of comments about the results of a landmark sickle cell inquiry here in the U.K. that uncovered evidence of racism in sickle cell patient care in the the public healthcare system. The report by the All-Party Parliamentary Group on Sickle Cell and…

I wrote about feeling unwell without any apparent cause in September, and then again last month. So, guess what? I was recently sick again. But in my quest for silver linings, I should stress that I think I have finally identified the cause: my period. The U.K.’s National…