When Getting Used to Chronic Pain Becomes a Problem
I have a difficult time knowing when I’m not feeling well apart from when I have a severe illness. That sounds ridiculous, right? Because I have a chronic condition, someone might think I would…
Shaniqua’s Sickle Chronicles
— Mary Shaniqua
Mary Shaniqua is a sickle cell patient (HbSS) living in the United Kingdom. She was diagnosed with sickle cell at 18 months old and uses “Shaniqua’s Sickle Chronicles” to narrate her experiences, to educate healthcare professionals, as well as empower and embolden other sickle cell patients. Mary Shaniqua is committed to raising awareness of sickle cell and its impact, with an aim to educate non-haematological specialist healthcare workers and the general public more widely on the life of a sickle cell patient.
Featured Post
What to consider before making a change to your treatment regimen
One of the more annoying parts of sickle cell disease is its unpredictable nature. One day, you think you understand the illness and how it affects your body. The next, sickle cell demonstrates…
Read more
The Hidden Danger From Strokes in Sickle Cell Disease
I recently watched a film on Netflix called “Strain,” which depicts the life of a child with sickle cell disease. The film mentions that stroke is a symptom of sickle cell, which I…
We Need More Awareness of Aplastic Crises
When a sickle cell patient mentions a crisis, most people think of a painful, vaso-occlusive crisis. I can understand why — it’s by far one of the most common complications of sickle cell…
Celebrating Another Birthday With Gratitude
Today is my birthday. When I was born, the life expectancy of sickle cell patients in the U.K. was 10 years old. It was worse in Nigeria, at 5 years old, which is why…
Why I Sought Therapy With a Trained Psychologist
People often tell me that I make living with sickle cell disease look easy. It is not. Whenever people make these types of comments, I always think that because I was born this way,…
My Concerns as COVID-19 Restrictions Are Lifted in the UK
Most COVID-19 restriction laws were lifted in England on July 19. This includes mask requirements, social distancing rules, work-from-home guidance, and the rule of six, or the maximum number of people allowed at…
Why I’m Open About My Experiences With Sickle Cell
One of the many stereotypes of British people is that we can be extremely reserved. In many places in the world, it is common for people to greet one another on the street each…
For World Sickle Cell Day, Read About My Reality
World Sickle Cell Day is upon us tomorrow, June 19. Following are memories that illustrate sickle cell’s ugly grip on my reality. *** The year was 2018 and the British Society…
How to Prepare Ahead of Time for Sudden Hospitalizations
One of the most annoying things about sickle cell disease is that a hospitalization can occur with very short notice. I might be fine one moment only to become severely ill the next, often…
Why We Need Better Doctor-patient Communication
It has been a while since I last wrote. This is because unfortunately, I had another hospital admission. I was admitted in mid-April and discharged last week, so I was hospitalized for quite…
How to Cultivate a Successful Career While Living With Sickle Cell Disease
I want to start by stressing that I do not believe a booming career is the only parameter of success. I have previously written about what success means to me and how sickle…
What a Top-up Blood Transfusion Looks Like for Me
I am scheduled to have a blood transfusion today. So, I want to take this opportunity to explain how I prepare and what this means for me. I have previously written about my…
