Caregiving Tips to Support a Loved One With Sickle Cell Disease
I have written about learning to appreciate those who support me on my journey with sickle cell disease. My support network plays a pivotal role in advocating for me when I’m in…
Sickle Sagas — Dunstan Nicol-Wilson
Dunstan Nicol-Wilson is a clinical project manager from South East London, United Kingdom. Dunstan has his master’s in public health with a global health focus. Dunstan was diagnosed with the “invisible disorder” sickle cell disease from birth in 1993. He hopes that his column will raise awareness for this disease, encourage others to share their stories, and showcase all the ups and downs of living with a rare condition. Dunstan loves anime, cooking, and Manchester United.
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Thoughts on my recovery 30 days after a sickle cell pain crisis
Part of my coping mechanism after a sickle cell crisis is to forget it ever happened. To address that, this year I started an audio journal during the recovery process as a way…
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As a Sickle Cell Patient, I Found Hope and Inspiration in a New Song
Disease representation is essential in all aspects of life. Over the years, I’ve noted a few mentions of sickle cell disease in mainstream media by celebrities. I’ll never forget hearing “…
My Support Network Has Sickle Cell, Too
Every day I make a thousand and one micro-decisions to manage my health with sickle cell disease and avoid having a vaso-occlusive crisis. Most of these decisions are automatic, subconscious actions based…
I Will Keep Fighting for Greater Awareness of Sickle Cell Disease
I have been a volunteer for a charity organization called Give Blood Spread Love for a couple years. We drop in on people at their work and other community establishments to raise awareness…
Sickle Cell Crisis Treatment Includes Caring for Mental Health, Well-being
I strongly advocate for mental health and well-being because I have seen the personal benefits of it. By paying attention to these issues in my life, my overall mood has improved, I’ve become…
Building Myself Up Yet Again After Another Sickle Cell Crisis
At the start of the year, I challenged myself to have zero sickle cell crises. I knew this goal was ambitious and something I’d never done as an adult, but I wanted…
One Year On: Raising Awareness by Documenting Life With Sickle Cell Disease
As World Sickle Cell Day approaches on June 19, I’ve been thinking about my contribution to raising awareness about sickle cell disease. For those dealing with the condition, sickle cell awareness…
Learning to Be Kinder to Myself With Sickle Cell Disease
I struggle with the fear of letting others down. For example, suppose someone scheduled a work meeting that is inconvenient for me. I’ll do anything to make sure I attend instead of suggesting…
In Defense of the Importance of Sickle Cell Clinical Trials
I work in the research and development field, an industry I didn’t know much about until I completed my first college degree. In this field, I’ve developed a vast understanding of how clinical…
My Sickle Cell Advocacy at Church Brings Unexpected Healing
Growing up in my African household, religion was a core element of my upbringing. As a family and community, we would thank God for all aspects of life and pray diligently for healing and…
Left to Avoid a Crisis, Right to Trigger One
I love playing adventure games, especially those in which your decisions affect the story’s outcome. For example, if you choose to steal, you’re a villain, and if you choose to share your possessions, you…
It’s OK Not to Be OK With Sickle Cell Disease
Representation of different people in all areas of society is key to empowering the next generation. Having a role model that looks or talks like you validates your own experience. But as a Black…
