‘Go Beyond, Plus Ultra!’: Surpassing the Limits of a Diagnosis
I was recently diagnosed with avascular necrosis (AVN) in my knees. When the doctor called to tell me, I expected to be OK with it. I had read fellow Sickle Cell Disease News…
Sickle Sagas — Dunstan Nicol-Wilson
Dunstan Nicol-Wilson is a clinical project manager from South East London, United Kingdom. Dunstan has his master’s in public health with a global health focus. Dunstan was diagnosed with the “invisible disorder” sickle cell disease from birth in 1993. He hopes that his column will raise awareness for this disease, encourage others to share their stories, and showcase all the ups and downs of living with a rare condition. Dunstan loves anime, cooking, and Manchester United.
Featured Post
This World Sickle Cell Day, I’m grateful for UK advocacy groups
In honor of World Sickle Cell Day, held June 19, I would like to highlight some incredible U.K.-based organizations I’ve had the pleasure of working with recently. These groups are not only changing the…
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Becoming a Master Sickle Cell Patient
I often underestimate how much I have learned about sickle cell over the years. To live with a chronic condition, one must understand all the symptoms and side effects that come with it. However,…
Navigating College With Sickle Cell
September always reminds me of preparing for a new school year. It’s been a while since I’ve had to do that, so I have long since fallen out of the habit. However, I have…
My Hopes for the Future of Sickle Cell
As August draws to a close, so does the end of summer. September brings a new season and a fresh start. It is also Sickle Cell Awareness Month — a time to get…
When I Feel a Sickle Cell Crisis Happening, I Follow These 5 Steps
The word “crisis” is probably the most accurate term for what happens when pain kicks in from sickle cell disease. The dictionary definition of a crisis is “a time of intense difficulty or danger,”…
From Now On, Sickle Cell Isn’t Just About Me
I have often overlooked the song “From Now On” from the movie “The Greatest Showman,” because “This Is Me” has to be the best song on the soundtrack, right? In the…
Having a Support Network Is Key When Dealing With Chronic Conditions
“You’ll Never Walk Alone” is a famous ballad sung by fans of the Liverpool Football Club. As a Manchester United fan, I hate Liverpool, but I love this anthem. Is that allowed? It…
Recovery From a Sickle Cell Crisis Requires Attention to Mental Health
Ah, here we go again. I should have known. If I drank more water, if I wore a hat, if I didn’t walk up all those stairs, if I didn’t eat so much, if…
Summer Is Here, So No More Sickle Cell Crises, Right?
It’s summertime, my favorite season here in the U.K. Summer brings great music, good vibes, and no crises! Sigh, I wish. I love summer weather because one of my main triggers for a…
I’m Cautiously Optimistic as COVID-19 Restrictions Ease in the UK
COVID-19 restrictions are easing here in the U.K. Prime Minister Boris Johnson said we must “learn to live with this virus,” and he is lifting laws requiring masks and social distancing. It feels…
Growing Up With Sickle Cell Taught Me to Stand Up to Adversity
With a chronic condition like sickle cell disease, I sometimes find it difficult to look far into the future. What exactly will my future be like? Will there be more hospital trips? More pain?…
How My Origin Story and Sickle Cell Disease Shaped My Childhood
I am going to take you behind the scenes of how this column, “Sickle Sagas,” came to be. I will show you everything about how I became an incredibly successful sickle cell advocate…
