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July 30, 2020 News by David Melamed, PhD

Distress Evident in Parents Caring for Teens with Sickle Cell, Survey Finds

Emotional distress affected nearly half of the parents caring for adolescents with sickle cell disease in a recent study, with greater numbers of hospital visits and other life disruptions predicting higher stress levels. Psychosocial support and education to help caregivers be more resilient and better able to cope could improve…

March 17, 2020 News by Vanessa Pataia

Acupuncture May Alleviate Pain in Children and Adolescents with SCD, Study Suggests

Acupuncture may be a useful add-on therapy to help manage pain in children and adolescents who have sickle cell disease, a new study suggests. The study, “Acupuncture for pain management…

March 10, 2020 News by Marisa Wexler, MS

Lack of Vitamin D in SCD Children Linked to Worse Hospital Outcomes in Study

Children and adolescents with sickle cell disease (SCD) who lack vitamin D are hospitalized more often due to pain crises, have longer hospital stays, and make more frequent visits to the emergency room, a new study has found. The study, “The association between vitamin D…

March 26, 2019 News by Alice Melão

Problem-Solving Intervention May Help SCD Teens to Transition to Adulthood, Study Shows

Development of problem-solving skills may help adolescents with sickle cell disease prepare for the transition to adulthood and also improve their ability to self-manage their health. Researchers at the Boston University Medical Center conducted a study to gain better insight on the perspectives of sickle cell disease (SCD)…

January 31, 2019 News by Alejandra Viviescas, PhD

Kids with Sickle Cell Anemia are More Sedentary than Healthy Peers, Study Suggests

Children and adolescents with sickle cell anemia do less physical activity and have a more sedentary lifestyle than healthy controls, according to a study. The study, “Objectively measured physical activity levels and sedentary time in children and adolescents with sickle cell anemia,” was published in PLOS…

March 22, 2018 News by Alice Melão

Racial Bias a Reality for Young Patients with Sickle Cell Disease, Study Shows

Negative experiences with a racial connotation are common among adolescents and young adults with sickle cell disease (SCD), Connecticut Children’s Medical Center researchers showed in a recent study. In the United States, sickle cell affects mainly African-Americans, and is historically perceived in the medical community as a “black disease.”…

Recent Posts

  • Hydroxyurea may help ease sleep issues in children: Study
  • Why some SCD patients give birth to children with the disease
  • You just found out your child has sickle cell disease. Now what?
  • PIONEER trial of pociredir still recruiting sickle cell disease patients
  • Guest Voice: 3 coping tools help my fight against sickle cell disease
  • CT scans for lung blood clots in sickle cell increased after 2020
  • Could gene therapy improve my life as an adult with sickle cell?
  • More perceived social support tied to less sickle cell severity: Study
  • Real-world benefits seen with hydroxyurea for sickle cell children
  • Proof-of-concept study to test curcumin gel VAS-101 in SCD


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