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June 13, 2024 News by Mary Chapman

New law signed to create Colorado outreach program for SCD patients

Legislation to provide new outreach and support services to Colorado residents living with sickle cell disease (SCD) is now law. Gov. Jared Polis (D) signed the measure (SB24-042) calling for the appropriation of $200,000 to make the Arie P. Taylor Sickle Cell Disease Outreach Program part of the…

November 1, 2016 News by Margarida Azevedo, MSc

Report Highlights Challenges of Sickle Cell Disease in Treatment, Access to Care

Treatment outcomes for people with sickle cell disease (SCD) have improved significantly in the past few decades. Today, over 90 percent of children who are born in Western countries with the genetic condition will live to adulthood. This is a remarkable achievement, as SCD was once synonymous with childhood mortality…

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  • Top-line data from Phase 3 trial of mitapivat expected this year
  • Hydroxyurea may help ease sleep issues in children: Study
  • Why some SCD patients give birth to children with the disease
  • You just found out your child has sickle cell disease. Now what?
  • PIONEER trial of pociredir still recruiting sickle cell disease patients
  • Guest Voice: 3 coping tools help my fight against sickle cell disease


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