Patients, Supporters Worldwide Recognizing Rare Disease Day 2020
An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The activities are focused on heightening ... Read more
Updates
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Sickle Cell Linked to Faster Kidney Function Decline in African-Americans, Study Shows
African-Americans with sickle cell trait and sickle cell disease have a significantly faster decline in kidney function than their unaffected peers with normal ... Read more -
Sharing Health Worries with Friends Is Good for My Well-being
Living with sickle cell disease is not easy. It affects every area of one’s life. An important part of managing the challenges that ... Read more -
Howard University College of Medicine Awarded $42K Grant for SCD ‘LIFE’ Project
The Howard University College of Medicine has been awarded a $42,000 grant to support its “LIFE (Learning Is Fundamental for Everyone) with Sickle ... Read more -
Pediatric SCD Patients with Acute Kidney Injury Face More Hospital Care, Higher Costs, Large–scale Analysis Finds
Pediatric patients with sickle cell disease complicated by acute kidney injury (AKI) were more likely to be admitted to the intensive care unit ... Read more
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Patients, Supporters Worldwide Recognizing Rare Disease Day 2020
An abundance of events are afoot around the world to mark Rare Disease Day ... -
Encounters with Medical Students Can Be Upsetting
My hospital also is a university full of medical students. Trainees follow their supervisors from ... -
FDA Efforts to Bring Patients into Treatment Decisions Focus of NORD Webinar
The U.S. Food and Drug Administration (FDA), a vast government bureaucracy, employs about 17,500 ... -
Hospital Readmissions High in Sickle Cell Patients, Study Shows
More than a quarter of patients with sickle cell disease (SCD) are readmitted to ... -
With Post-Brexit Move to Amsterdam Complete, EMA Renews Rare Disease Focus
The gleaming new Dutch headquarters of the European Medicines Agency (EMA), fronting Domenico Scarlattilaan ... -
Most U.S. Residents Support Human Genetics Research, Online Poll Says
A recent survey found that U.S. residents are largely interested in and support continued ...
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Kids with Sickle Cell Disease at Risk for Lead Poisoning, NYC Study Shows
News
National and local policies have led to large reductions in lead poisoning cases overall in the U.S., but severe cases are still common among children. Recently, researchers at the New York City Department of Health and Mental Hygiene (DOHMH) investigated sources of exposure, risk factors, and ... Read more