September is National Sickle Cell Awareness Month, set aside annually to bring attention to the blood disorder and the…
Articles by Mary Chapman
The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare…
With a stem cell transplant (SCT) being a potentially curative treatment for sickle cell disease (SCD), a blood disorder that…
While it will be entirely virtual this year, the 7th Annual Walk With the Stars & Move-A-Thon is taking…
Supporters are poised to mark World Sickle Cell Day, observed each June 19 to raise awareness about the red…
The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand how the…
The National Organization for Rare Disorders (NORD) has opened a financial assistance program for people in rare disease community…
Global Blood Therapeutics (GBT) is taking proactive measures to support public health efforts and sickle cell disease (SCD) patients…
Record numbers of patients and advocates from across the state of Georgia — which has the nation’s fourth-highest number of…
Beginning on Feb. 29, Rare Disease Day, chapters from notable scientific books and clinical review articles covering rare disorders will…