In my last column, I shared tips about dating with sickle cell disease. Continuing in the spirit of the Valentine’s Day season, I wanted to discuss in this column tips for those of you who wish to date someone with sickle cell. I have found that this topic isn’t…
Columns
Self-love is so important. I read somewhere that we teach others how to love us through the way we love and treat ourselves. So, I want to ask you: Do you treat yourself with the love you deserve? Do you expect to be shown love from others? Do…
I am passionate about raising sickle cell disease awareness. Increased awareness leads to a better understanding of the condition, which leads to more conversations about it. I believe that this will lead to conversations among people in positions of power, who can then take action to improve our lives.
One thing people always ask me is how I navigate dating as a sickle cell patient. Since we’ve now entered the month of love, with Valentine’s Day right around the corner, what better time for me to write about dating while chronically ill? From the start, I am very open…
This week has been challenging for me. A brutal combination of cold weather and stress has left me facing back-to-back sickle cell crises, and there’s no telling when it might end. In the past, I had been known to be quite stubborn about going to the hospital…
In a previous column, I mentioned some of the good things that happened to me last year. This included a decrease in my iron levels and my subsequent switch from Desferal (deferoxamine mesylate) subcutaneous infusion pumps to Exjade (deferasirox) tablets. This was one of my greatest highlights of…
I’m writing this column during a sickle cell disease crisis. I have not had one this bad in a while, so I’ve been feeling pretty low. I recently explained to a friend that I hate feeling like I am helpless and wasting time whenever I have a crisis.
Just like that, 2020 is over. What a year! I do not think 2020 turned out as expected or planned for anybody at all. When the year started, I had really low expectations. I did not expect a pandemic, but I also did not start the year with a list…
Here’s a little fun fact about me: Christmas is my second favorite time of year after August, which I like because it’s one of the hottest months here in the U.K. It’s also my birthday month, and the month that Notting Hill Carnival is held. With this festive period…
I have been writing for Bionews, the publisher of Sickle Cell Disease News, for over a year now. This experience has been amazing, to say the least. When I was first contacted about becoming a columnist, I was skeptical. I questioned whether I would be good…
Recent Posts
- Etavopivat Phase 3 results support potential approval in sickle cell disease
- New diagnoses result in new grief and a new relationship with my body
- Study finds lower treatment use among SCD patients in sub-Saharan Africa
- Outside, looking in: The silent isolation of living with sickle cell disease
- Bias in sickle cell care may be tied to opioid stigma, new study finds
- How I advocate for my health needs while traveling for work
- Brain development changes seen in children with sickle cell anemia
- Beam to seek OK of gene-edited cell therapy risto-cel for sickle cell disease
- Agios to seek accelerated approval in US of oral mitapivat for SCD
- Japanese agency awards $32M to advance sickle cell treatment to trials