Shaniqua’s Sickle Chronicles – a Column by Mary Shaniqua

In the wake of the British government announcing recently that it plans to cut its welfare budget by more than £5 billion ($6.5 billion), I’ve noticed a shocking number of comments in mainstream and social media that seek to shame the disabled population with harmful rhetoric and negative stereotypes. To…

The date was Friday, Jan. 31, 2025. It started like any other day. As I settled down to start working, I noticed I had a lot of messages, and more came in as the day went on. Message after message, phone call after phone call alerted me about a supposed…

In a society that’s seemingly obsessed with sex and physical intimacy, you may be surprised to hear that there aren’t many resources available for those with chronic illness and physical limitations. So let’s talk about it. Sickle cell disease is one of many conditions that can affect physical intimacy.

Keeping with the theme of February, the month of love, I wanted to offer some practical tips for how to support a partner with sickle cell disease. The reality of living with a chronic illness is that things may not always go well, as the condition can be unpredictable.

Because today is recognized as Valentine’s Day or “love day” across much of the globe, I want to explore the difficulties that can arise within romantic relationships when one partner has sickle cell disease. (Fun fact: Many parts of the Eastern Orthodox Church celebrate Saint Valentine on…

Here’s a feeling that I’m certain other sickle cell disease patients relate to, and who knows, perhaps their carers do, too: It’s astounding how much sickle cell can change the body over time. I know I say it often, but honestly, it feels like the disease has its own…

Sickle cell disease is highly misunderstood, and our patient community is acutely aware of this. One of the key lessons I’ve learned throughout my journey with this illness is the importance of a strong community. Fighting sickle cell each day and learning to navigate the world as a…

I recently had my first blood transfusion of the year. It’s one of the most common treatments for sickle cell disease. Two types of transfusions are used to treat sickle cell patients: top-up, or simple, in which healthy blood is delivered through a cannula, and exchange,…

Sickle cell disease is a constant, annoying “companion” in my life. My list of grievances about the illness is never-ending, but one of the things I find most daunting is the disease’s unpredictable nature. There’s almost no way to know when a sickle cell pain crisis will strike. Unfortunately,…

Living with sickle cell disease comes with a heavy cost. Much of your time is spent seeking to understand your body, how the condition impacts you as a person, and then adjusting your lifestyle to maximize this knowledge. This is a never-ending process because life takes you through seasons,…