Backed by a new study suggesting that sickle cell disease (SCD) is common among refugees in Southern Europe, some hematologists are calling for increased screening measures. Specialists are working to determine the extent of blood disorders within the population. They’re also outlining ways to help identify and treat…
News
Adults with sickle cell disease score worse than their healthy, unaffected siblings on cognitive tests, despite treatment with hydroxyurea, a study reports. The study “Neurocognitive functioning in symptomatic adults with sickle cell disease: A description and comparison with unaffected siblings” was published in the journal Neuropsychological…
The California Institute for Regenerative Medicine (CIRM) and the National Heart, Lung and Blood Institute (NHLBI) have entered into a “landmark” collaboration to co-fund and help speed the development of cell and gene therapies to cure sickle cell disease (SCD), according to a press release.
Findings on Abnormal Hemoglobin Assembly Could Lead to Lower-Dose SCD Medications, Researchers Say
A study of sickle cell disease (SCD) at the molecular level found abnormal hemoglobin molecules assemble much faster and less efficiently than previously thought — findings that could lead to the development of new treatments. The researchers said better understanding of the assembly process is the first step toward…
Holistic Treatment Approach May Help Heal Long-Lasting SCD-Related Skin Ulcers, Case Report Shows
A newly developed treatment approach, known by the acronym SICKLE, was shown to be a safe strategy to manage and treat long-lasting sickle cell disease-related ulcers in a case report. This holistic approach was able to heal skin wounds, which had not responded to prior standard treatments, within six months. The…
More people search for information on sickle cell disease (SCD) during winter than summer, indicating seasonal changes in symptom flare-ups, an analysis of Google search queries shows. Findings were published in the study, “Seasonal manifestations of sickle cell disease activity,” in the journal Nature Medicine. In SCD,…
With an estimated 1.37 billion inhabitants, India will likely surpass China in five years as the world’s most populous country. That also means it will have more rare-disease patients than any nation. It already has more than twice as many as the 28-member European Union. Harsha K. Rajasimha, a genomics…
In an effort to raise awareness about the latest in sickle cell disease therapy, Emmy award-winning National Football League (NFL) broadcaster Solomon Wilcots has partnered with biopharmaceutical company Emmaus Life Sciences to launch “Sideline Sickle Cell.” The educational campaign targets the sickle cell disease (SCD) community —…
Loma Linda Hospital ‘Effecively Cures’ Girl Using Stem Cells Transplanted from Dad, Report Says
Clinicians at the Loma Linda University Children’s Hospital successfully performed that institute’s first stem cell transplant, and report having “effectively cured” a girl with sickle cell disease (SCD). “She is now disease free and can…
Sickle cell disease patients experience silent strokes in the deep white matter of the brain that is prone to low oxygen supply, a brain-mapping study shows. The study, “Silent infarcts in sickle cell disease occur in the border zone region and are associated with low cerebral…
Recent Posts
- $3M Breakthrough Prize honors duo whose work changed SCD treatment
- Etavopivat Phase 3 results support potential approval in sickle cell disease
- New diagnoses result in new grief and a new relationship with my body
- Study finds lower treatment use among SCD patients in sub-Saharan Africa
- Outside, looking in: The silent isolation of living with sickle cell disease
- Bias in sickle cell care may be tied to opioid stigma, new study finds
- How I advocate for my health needs while traveling for work
- Brain development changes seen in children with sickle cell anemia
- Beam to seek OK of gene-edited cell therapy risto-cel for sickle cell disease
- Agios to seek accelerated approval in US of oral mitapivat for SCD