Beyond my breaking point: My hypothyroidism diagnosis

Managing multiple sickle cell complications can be emotionally and physically overwhelming. Today I’d like to share an experience that still resonates deeply with me: my heartbreaking reaction to the diagnosis of one of those complications. Interestingly, it wasn’t the worst I’ve faced, but my reaction to it was undoubtedly the most poignant.

During medical school, I was already navigating a multitude of sickle cell-related complications, such as bone issues, depression, infections, chronic pain, and many more, all while juggling academic responsibilities.

One day I detected a worrisome symptom and immediately knew something might be wrong. I confided in a close friend, and we decided to investigate further. A series of tests revealed the unsettling diagnosis: hypothyroidism, which can lead to a range of symptoms — weight gain, anxiety, fatigue, brain fog, neck mass, cold hypersensitivity, and constipation, among others.

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A powerful response

As I gazed at the test results, I felt an overwhelming surge of emotions, and tears began to flow. The cumulative burden of dealing with another complication, on top of my existing health issues and academic pressures, had finally taken its toll. Normally, I’m not one to show emotions easily, but in that moment, I felt like I’d reached my breaking point. I couldn’t help but wonder, “Why me?” and “Not again.” The weight of my circumstances seemed crushing.

I didn’t inform any of my family members I was going to have the test, so my friend couldn’t take me home in my wailing state. We had to go to his place, where he tried his best to give me a shoulder to cry on. For almost two hours, I released all my pent-up emotions, crying nonstop.

After that release, I surprisingly felt a sense of relief and could return home and share the sad news with my parents. At that point, I wasn’t showing emotions. I’m not sure my parents understood that emotionless revelation of my diagnosis, but I told them anyway. After that, I sought solutions and, eventually, a specialist for treatment.

Initially, I had no idea that hypothyroidism was linked to sickle cell disease. It wasn’t until years later, when I met a few sickle cell warriors with the same diagnosis, that I began to wonder if there were a connection. I searched online but couldn’t find any conclusive evidence at the time.

However, I discovered a study a few years later that explored the endocrine complications of sickle cell disease, and it listed hypothyroidism as a potential complication. Reading that study brought me a sense of vindication, as one of my caregivers had suggested that I was somehow responsible for developing hypothyroidism, a notion I found hurtful.

Handling our complications

Sickle cell complications can certainly feel overwhelming and may temporarily break you. However, it’s ultimately within your control to decide whether these challenges will have a lasting impact on your life. It’s perfectly normal to cry and express your emotions during tough times, but it’s important not to let that sadness linger for too long.

Rather than succumbing to self-pity, focus on seeking solutions. Explore treatment options that can help manage your complications and improve your overall well-being. Remember, these challenges may test you, but they don’t have to define you.

As a sickle cell patient, you have the strength to overcome any complication that arises. While some complications may not be entirely curable, they can be effectively managed, just as you manage your sickle cell disease. I firmly believe that sickle cell warriors should never lose hope or allow any complication to lead to feelings of depression. Instead, we must maintain a positive outlook and continue to fight through our challenges.

Note: Sickle Cell Disease News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Sickle Cell Disease News or its parent company, Bionews, and are intended to spark discussion about issues pertaining to sickle cell disease.