Leola Conley
Forum Replies Created
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In my opinion not. I am a parent of a 22 year old who has SS. I feel that there are just some things that time cannot heal. You learn to adapt, accept, and get through it. But in your friend’s case I am sure there will always be some hurt that she/he can no longer get a stem cell transplant. She or he were so looking forward to beginning a life free from pain and unexpected hospitalizations, doctor visits, restricted activities, etc. As the song goes, I Can Only Imagine.
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No not at all. I am the parent of a 21 year old with SS. I love her more than anything as she is a joy to me, but life has always been stressful trying to work and make sure I was always there for her. She is a college student now and I still worry about her health as she seems to down -play the seriousness of her disease.
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<p style=”text-align: left;”>Faith, I am the mother of a 21 year old daughter who has SS. She is a senior in college. I always pray for God to help everyone who has to deal with this disease. There seems to be an upsurge in the development of new medicines recently. My daughter has been put on Oxbryta just recently by her doctor. I am praying that it really really works for her. Too early to tell as it has been 2 weeks. Praying everyone with SCD have accessibility to whatever drug or treatment that may help improve their lives.</p>