Her Sickled Journey — Tito Oye

I recently posted on social media about a benefit that London residents with sickle cell disease may be entitled to, and its reception made me both happy and upset. As a Londoner, I’ve been using a disabled…

In September, I celebrate two years since my last serious sickle cell crisis and hospitalization. I’m so happy to be in this position, because I don’t take my health for granted. I know how bad sickle cell…

Sickle cell disease is considered a rare condition. In the U.K., where I live, an estimated 15,000 people have it. In a population of over 66 million, it’s safe to say that my chances of meeting other people…

Having sickle cell disease or other chronic conditions means having to overcome many hurdles. For example, receiving bad news about our health can cause us to be sad. While it’s impossible to be positive all of the time, we…

The Summer Olympics in Tokyo are in full swing, and even with the multiple hurdles that COVID-19 has created, I am happy the games are taking place. I’m not hugely into sports like many people are, but whenever…

Last week, I did something I never thought I would do. It’s something that people with sickle cell disease are strongly advised against doing. But it also has redefined my abilities and defied the limitations I once imposed on…

When speaking to a person with a chronic illness, you might do and say things with the best of intentions, but sometimes it may not translate well. Following are some of the things I don’t like to hear. Apologies…

I can’t stress enough the importance of drinking water. Experts recommend that normal, healthy adults consume six to eight glasses of fluid daily. Staying hydrated allows the body to function more optimally, which is especially important for people…

Many people with chronic illnesses may agree with a common statement that “our illnesses do not define us.” I understand that some believe their illnesses don’t change who they are. They can still live a meaningful, successful, and fulfilling…

There is no single weight, shape, size, age, or ability that dictates healthiness — no single standard. Our bodies and minds are built uniquely, so we must embrace our differences to avoid making unhealthy assumptions and comparisons.

Unfortunately, the healing process is not always as straightforward as we’d like it to be. In fact, it can become quite exhausting and frustrating. For example, perhaps after feeling unwell for some time due to an illness…

In 2005, my doctors started me on a medication called hydroxycarbamide, also known as hydroxyurea, or “hydra.” It was prescribed to help me manage the symptoms of sickle cell disease. Many people with sickle cell disease use hydroxycarbamide.