Dunstan Nicol-Wilson is a clinical project manager from South East London, United Kingdom. Dunstan has his master’s in public health with a global health focus. Dunstan was diagnosed with the “invisible disorder” sickle cell disease from birth in 1993. He hopes that his column will raise awareness for this disease, encourage others to share their stories, and showcase all the ups and downs of living with a rare condition. Dunstan loves anime, cooking, and Manchester United.
It’s almost winter again here in the U.K., and every year I’m shocked by the cold weather and its impact on my body. Winter has always been one of my greatest adversaries, and as…
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While I realize it’s impossible to plan for every eventuality, I often think about what I could’ve done better or differently to prevent a sickle cell pain crisis. Like the random bumps in…
For the past few days, I’ve been thinking about learned behavior. For example, why do I speak the way I do? Why do I respond to specific cues the way I do? Upon reflection,…
Smile, be polite, be eloquent, and watch your tone to ensure others feel comfortable. These are my thoughts during daily interactions. Unfortunately, because of the negative preconceptions about Black men, my day-to-day is…
Reserved, calm, and quiet are adjectives that have been used to describe me at some point, and I’d say they’re pretty accurate. I usually step out of my shell only when I’m around people…
An eight-hour flight, a three-hour boat ride, a six-hour bus ride, and then a two-hour hike up a mountain: This is the journey I would take if I decide to visit extended family in…
Note: This column includes thoughts about suicide. Resources for help are listed at the end of the column. Recently, I was privileged to speak at the Smile of a King Foundation, which was…
Research is essential for change. For example, researching different diets and exercise regimens has helped me learn how to better manage my sickle cell disease. I’m open to discovering new techniques because…
For me, stress is one of the biggest triggers of sickle cell crises. As a child, it wasn’t easy to identify when or why I was stressed. Although I try to do this…
I’ve been reflecting on what it means to have an invisible condition. Sickle cell disease is often called an invisible illness because you can’t immediately see it and it’s poorly understood. Life…
As I write, a familiar chorus plays in the background, followed by the line, “Please swallow your pride.” Aside from the hook, I’ve never really listened to the lyrics of Bill Withers’ “Lean…
February is often known as the month of love. That makes it an interesting time in the sickle cell community, as I often see differing viewpoints on how to approach dating with the…
For Rare Disease Day on Feb. 28, I’ll be speaking to medical professionals about sickle cell disease and how they can better support our community. It’s a brilliant opportunity to influence…
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