Chronic diseases and pain can sometimes take away one’s happiness. They are proven predisposing factors for depression. In my case, sickle cell disease has been challenging. Living with frequent acute pain episodes, chronic pain, and numerous sickle cell complications can easily snuff out your happiness, especially…
The Sickle Cell Crusader — Oluwatosin Adesoye
Adesoye Oluwatosin is a practicing physician, a passionate and award-winning sickle cell advocate, and educator. She’s the founder of Sickle Cell Celebs, an online community for people living with sickle cell disease, and of Sicklelive Foundation, an NGO that caters to people living with sickle cell disease. She’s a Nigerian diagnosed with sickle cell anemia (HBSS) in 1987 when she was just 1 year old. She enjoys using her personal and medical experience to educate and create awareness about sickle cell disease and also help reduce health inequalities in its management. She’s called “The Sickle Cell Crusader.” Her column promises to be expository, educative, and compelling.
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A sickle cell crisis isn’t a polite guest, and it often arrives unannounced. Over the years, I’ve learned that my crises either come on suddenly or build gradually, with subtle clues or a red alert. Recognizing these warning signs of a sickle cell pain crisis early is the first…
I often hear a fascinating question among those living with sickle cell disease, sickle cell advocates, parents, caregivers, etc. — “Can sickle cell disease affect our goals and career choices?” — and I usually find some of the answers as interesting as the question. I’ve heard answers like,…
From my experience, pain is one of the hallmark symptoms of sickle cell disease. In fact, it is its trademark. Unsurprisingly, the translation of sickle cell disease in my Yoruba language is “aro’moleegun,” which denotes “bone pain.” If you have moderate to severe sickle cell disease, pain is…
“I have another patient with sickle cell disease, but she’s not affected as severely as you. What’s wrong with you?” “This person has your same genotype. Why isn’t she experiencing the same sickle cell complications as you are?” “I know a sickle cell warrior who can do this…
“I have sickle cell disease. So what?” That was my reaction as an 11-year-old girl about 24 hours after I learned I had sickle cell disease. Even though I had the disease, I was still the best student in my class and had a lovely family. Apart from…
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