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Back in 2020, I shared details of my medication regimen at the time to treat my sickle cell disease. Since then, I’ve had a few changes in my health status. Thankfully, I successfully overcame my battle with iron overload, a serious side effect of sickle cell…

I can’t think of one area of my life that isn’t affected by sickle cell disease — a reality that can easily become overwhelming and emotionally draining. That’s why a strong support system is imperative. A support system refers to a network of people who are active and present…

Many people have asked me how they can be a good friend to someone with sickle cell disease. I’m always willing to give advice, but I include the caveat that my suggestions are what I would appreciate. They may not apply to everyone. That said, I feel like a good…

Would you believe me if I told you that I was once hospitalized with a sickle cell crisis, and a reflexology foot massage is what caused the pain to subside? Probably not, right? I know it sounds rather strange. I’d been given all sorts of medications that were supposed…

Recently, for the first time I can remember, sickle cell disease has been in mainstream media quite a bit. Because much of the discourse has focused on treatments and curative therapies, I’ve been reflecting on what I can do to help drive progress in these areas. In…

Cardiomegaly, or having an enlarged heart, is a significant manifestation and a direct complication of sickle cell disease. It’s a common sign of cardiovascular issues and is more prevalent in adult patients. Sickle cell disease itself is a chronic state of anemic that occurs as a result…

I celebrated my birthday last month, and I’m grateful to be 31 and see another year. I feel blessed — even though, in recent months, I’ve experienced loss within our sickle cell community. Each loss reminds me that nothing is guaranteed in life. Nonetheless, I’m blessed to have…

As caregivers, we often find ourselves riding a roller coaster of emotions, with each twist and turn bringing forth a new wave of feelings. Caring for a loved one with chronic illness can involve moments of joy and relief, as well as bouts of sadness and guilt. In my journey…

Last week, I shared that I’m conflicted about joining clinical trials that test potential treatments for sickle cell disease. Although I don’t yet trust the healthcare system enough to participate, there are other ways I can make a difference. Medical progress may involve new treatments or even cures,…

A few weeks ago, I attended a sickle cell awareness event for pharmacists. I was simply there as an interested sickle cell disease patient; I don’t work in the pharmaceutical industry. One major topic of discussion was the lack of progress toward cures for sickle cell disease.