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The pros and cons of joining sickle cell support groups

Joining sickle cell support groups has proven invaluable for me in navigating the challenges of living with the disease. The benefits I’ve gotten from these groups have far outweighed the drawbacks I’ve encountered. In 2018, I joined several support groups while struggling with avascular necrosis, which left…

5 tips for fatigue management for sickle cell caregivers

In my previous column, I explored the overwhelming emotions and fatigue I experience as a caregiver to my young cousin with sickle cell disease. However, I didn’t share the invaluable strategies I’ve developed to cope with these challenges. Today, I aim to shed light on the methods I’ve…

My struggle to figure out how to help a caregiver

Over the past month, I’ve had caregivers, friends, and siblings of patients with sickle cell disease reach out to me with questions about how to better support their loved one. Each scenario I’ve read has reminded me how difficult it can be to support someone with a chronic condition.