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For me, 2022 has just been OK in terms of sickle cell disease. I’m still not where I’d like to be health-wise, but I’m getting closer. One thing I’d really like to celebrate is that I haven’t contracted any severe infections this year. That is a big win, and…

A few weeks ago, I spent a weekend with new family members, and it was the most action-packed weekend I’ve had in a while. I was exhausted by little people! I helped set up a 3-year-old’s birthday party. I was a pretend patient for the newest toddler doctors and at…

I recently began training to become a mentor to children with sickle cell disease. As part of the preparation, I’ve reflected on my teenage experiences with sickle cell. What was my mindset during that period? I was fearless and ignorant of my limitations. I thought I was invincible.

Earlier this week, I received an email that left me in tears. Its content is unimportant. But what I can share is that it was disappointing and related to things I require to manage sickle cell disease. I had been fighting for these things for nearly two weeks. My…

Winter has arrived here in the U.K., and the end of the year is fast approaching. During this period, it becomes difficult to avoid things that can trigger a sickle cell pain crisis, including cold weather, stress, exhaustion, and an unbalanced diet. While some things are in my…

In my quest to better manage sickle cell disease, I’ve been thinking recently about the concept of delayed gratification. This involves resisting the impulse to accept an immediate reward in the hope of obtaining something more valuable in the future. I’ve heard this term mentioned a lot in reference…

When children become adults, they must transition from pediatric to adult healthcare services. Transition programs are particularly important for helping patients with chronic conditions navigate this switch. A good program ensures patients are informed about any changes to their care and treatment, and I believe it should also help…

I can be a slow walker, which is controversial for someone who grew up in the city. The hustle and bustle of city life dictates that somebody, somewhere, is in a rush to get to where they need to be. It’s not that I’m incapable of walking faster, although sometimes…

Imagine: You’ve had a long and stressful few months, you’ve accrued some leave at work, and you’ve saved up some money, so you decide to take a holiday. You already have a bucket list of locations you want to visit, so selecting a holiday destination, accommodations, and itinerary took you…

My ultimate goal as a sickle cell advocate is for advocacy to no longer be necessary. I’m a private and introverted person and usually prefer to keep to myself. However, as an advocate, I must put myself out there and leave my comfort zone to share my journey with…