Columns

Pursuing a purposeful life while living with moderate to severe sickle cell disease can be very tough, as it presents a unique set of challenges. When the pain is frequent and the complications are real, it’s easy to lose track of one’s goals. However, I’ve learned that living with purpose…

Being a medical doctor who also lives with sickle cell disease remains one of my greatest achievements. Becoming a physician, despite the odds, was not an easy journey. It demanded resilience, relentlessness, dedication, and hard work. Nearly a decade into my medical career, I’ve realized that being a doctor with…

Note: This column discusses suicidal ideation. Resources for help are listed at the end of the column. Growing up, I was a happy-go-lucky child. I was always in a good mood and rarely cried. I believed depression would never find me until sickle cell disease said, “Hold my beer.” Depression…

I recently had the first-ever MRI scan of my brain, not something I ever expected. Getting an MRI came up during one of my routine sickle cell disease checkups, appointments I usually have every six months. As the doctor reviewed my medical history, she noticed something important. Here…

Note: This column describes the author’s own experiences with hydroxyurea and thoughts about other treatment options. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. I spent the first week of the year recovering from a nasty cold. After two…

In my 39 years with sickle cell disease, pain has been an uninvited and frequent guest and my most prominent symptom. Sickle cell crises are acute episodes of pain caused by the sickling of red blood cells, which impairs blood flow throughout the body. While I’ve had countless painful episodes…

As the new year begins, I’ve been reflecting deeply on all that happened in 2025. Living with sickle cell disease has never been easy, but last year marked a decisive shift for me. For the first time in a long while, I stopped allowing the condition to dictate every…

The beginning of a new year often feels overwhelming. I tend to ride a wave of excitement after spending time with family and friends, even as I feel a great deal of anxiety about setting health-related goals for the upcoming year. The media can make me feel as if my…

Living with sickle cell disease requires more of a patient than just managing symptoms. One major necessity is the ability to effectively communicate one’s needs. Self-advocacy is a lifelong skill that enables people with the disease to effectively navigate healthcare systems, educational settings, workplaces, and personal relationships. When nurtured…

As part of my advocacy, I frequently deliver keynote speeches and participate in panel discussions, and I’m often asked a particular question: “Is sickle cell disease a disability?” My answer is always the same. Here in the U.K., where I live, the Equality Act 2010 defines disability as…