Columns

Why It’s Important to Learn Your Genotype

If you haven’t already, I would recommend you get your genotype tested. Sickle cell is an inherited disease. This means if both parents carry a sickle gene, there is a chance the baby can have sickle cell disease. If both parents have the sickle cell trait, there is…

Left to Avoid a Crisis, Right to Trigger One

I love playing adventure games, especially those in which your decisions affect the story’s outcome. For example, if you choose to steal, you’re a villain, and if you choose to share your possessions, you start down the path toward becoming a hero. The choices may be small in the grand…

It’s OK Not to Be OK With Sickle Cell Disease

Representation of different people in all areas of society is key to empowering the next generation. Having a role model that looks or talks like you validates your own experience. But as a Black man with a chronic condition, role models in my community were few and far between. For…

My Child Is More Resilient Than I Realized

I speak for many mothers when I say that receiving my child’s sickle cell diagnosis left me thinking he would be incapacitated. I thought he would be in pain every day, with a poor quality of life and unable to do normal daily activities. Considering many of my family…

Returning to Work After a Prolonged Medical Absence

In my last column, I wrote about finally being discharged after a lengthy hospitalization. Once I got home, I rested for about a week and then decided to return to work. Maintaining a successful, full-time career while having a disability like sickle cell disease requires good decision-making…

My Career Was Shaped by Sickle Cell

I’ve had the opportunity to work with some amazing people who have given me the space to grow and develop. These experiences have been invaluable, and as a manager, I’ve been sharing them with junior staff to help shape their own journeys. In doing so, I’ve reflected a lot on…