I would love to go on one of the Bali swings I always see on social media and then capture the moment. However, my friend informed me that the reality is that there are long queues and it’s not as good as it looks in photos. The reveal…
Columns
I’ve shared that I’m on a blood transfusion program as part of my sickle cell treatment. There are two key types of blood transfusions: blood exchanges and top-up transfusions, which are quicker and delivered through a cannula, usually inserted into the hand. I started undergoing top-up…
The cooler and sometimes gloomier weather of autumn has begun to kick in here in London. However, I’m still daydreaming about the amazing summer I had. A few weeks ago, I was in a villa in Cyprus with most of my friends, where I had such a great time. This…
For many young people, summer has come to an end and the new school year has begun. School, no matter the grade or level, comes with both mental and physical challenges. It’s important that we equip children with sickle cell disease with the knowledge and tools they need to…
In my previous column, I shared that I’d contracted what I think was food poisoning, which led to dehydration and, subsequently, a sickle cell crisis. In seeking medical attention, I faced several hurdles while navigating my local ambulance services. Unfortunately, the hurdles often continue even after I’ve arrived…
Motherhood has beautiful moments, but it certainly comes with a dose of anxiety and emotional roller coasters. Add any type of impairment or disease to the mix, and you might find yourself on the verge of a mental breakdown. Caring for a child with sickle cell disease is…
While my son, who has sickle cell disease, has been mostly well, he’s had to go to the emergency room twice since being born. The first was when he was 9 months old, and the second was in March, just before his second birthday. The first incident was insignificant.
Recently, while on a long journey, I rewatched one of my favorite movies, “Inception.” I find the concept of the film unique; in short, it’s about manipulating someone’s subconscious or dreams to create a strong idea or obtain information. Our dreams and desires are powerful forces that can…
I was recently hospitalized for a sickle cell crisis. You see, I’d planned to go to dinner with a lovely friend whom I hadn’t seen since before the pandemic. But that was for the evening. When my sister-in-law reached out to ask my sister and me to join…
I almost can’t believe my son is 2 years old already! It doesn’t help that every time I take him out, acquaintances, and even some friends, scream in disbelief when they see him — they still expect to see a sitting baby, not a running toddler. I’m thankful he’s been…
Recent Posts
- New year, old goals, because repeating health resolutions works for sickle cell
- Researchers compare gene therapies for sickle cell disease in mice
- Emmaus to sell North American rights to sickle cell treatment Endari
- For sickle cell patients, developing self-advocacy skills starts in childhood
- Standard sickle cell treatments slash stroke risk in children: Review
- Is sickle cell disease considered a disability?
- Tips for enjoying the most wonderful time of the year with sickle cell
- Big Nova donates $3M to expand access to stem cell transplants
- Investigational SCD therapy shows stronger results at higher dose
- Risto-cel showing lasting benefits for people with severe SCD in trial