Columns

Now that the summer months have passed, I find that it’s harder to forget that I have sickle cell disease. You may be thinking, “How can she ever forget that she has sickle cell?” Well, I never really forget, but there are times when looking after myself requires less…

The mind is a powerful tool. One phenomenon I’ve become aware of in the last year is speech impairment after a sickle cell crisis. It’s as though the volume of my voice has been turned down and no one can hear me. I’m usually soft-spoken, but during this phenomenon,…

I’ve shared that I’m on a blood transfusion program as part of my sickle cell treatment. There are two key types of blood transfusions: blood exchanges and top-up transfusions, which are quicker and delivered through a cannula, usually inserted into the hand. I started undergoing top-up…

The cooler and sometimes gloomier weather of autumn has begun to kick in here in London. However, I’m still daydreaming about the amazing summer I had. A few weeks ago, I was in a villa in Cyprus with most of my friends, where I had such a great time. This…

For many young people, summer has come to an end and the new school year has begun. School, no matter the grade or level, comes with both mental and physical challenges. It’s important that we equip children with sickle cell disease with the knowledge and tools they need to…

In my previous column, I shared that I’d contracted what I think was food poisoning, which led to dehydration and, subsequently, a sickle cell crisis. In seeking medical attention, I faced several hurdles while navigating my local ambulance services. Unfortunately, the hurdles often continue even after I’ve arrived…

Motherhood has beautiful moments, but it certainly comes with a dose of anxiety and emotional roller coasters. Add any type of impairment or disease to the mix, and you might find yourself on the verge of a mental breakdown. Caring for a child with sickle cell disease is…

While my son, who has sickle cell disease, has been mostly well, he’s had to go to the emergency room twice since being born. The first was when he was 9 months old, and the second was in March, just before his second birthday. The first incident was insignificant.

Recently, while on a long journey, I rewatched one of my favorite movies, “Inception.” I find the concept of the film unique; in short, it’s about manipulating someone’s subconscious or dreams to create a strong idea or obtain information. Our dreams and desires are powerful forces that can…