I’ve had the opportunity to work with some amazing people who have given me the space to grow and develop. These experiences have been invaluable, and as a manager, I’ve been sharing them with junior staff to help shape their own journeys. In doing so, I’ve reflected a lot on…
Columns
In my last column, I shared that I was in the hospital due to a sickle cell crisis. I have finally been discharged, thank God. I contracted an infection at the beginning of February that resulted in a crisis. I was hospitalized for five weeks and in extreme…
The constant pandemic lockdowns and quarantines in the past two years caused me to put on a considerable amount of what I call “quarantine weight.” My fitness levels dropped below my standard, which was low to begin with. Then, last year, I was diagnosed with avascular necrosis,…
Should I Leave My Safe Space?
In the past, whenever I had a sickle cell crisis, I often felt like I’d made a mistake. It was my fault that I’d triggered the episode. Thoughts such as “Why did I do that?,” “I am so silly,” and “I never learn” would cycle through my mind. Each…
It’s been several weeks since my last column, because I was unfortunately hospitalized at the beginning of February. I was hoping to have been discharged by now, but sadly I’m still here. Last month, I contracted an infection that resulted in some horrible symptoms. I won’t go into detail, but…
I’ve often considered myself unlucky to carry the burden of sickle cell disease, which sometimes seems insurmountable. The journey can be isolating. I have aches and pains that nobody can see and emotions I’m still learning to process. In many situations, I’m constantly thinking about myself, particularly how to avoid…
Every year on my Twitter feed, I see a tweet about how important it is to know your genotype, as well as your partner’s. I agree with the rationale for this; it’s important to be as prepared as you can when dating. Understanding how genotypes work means you can…
As a child, the ground seemed like a sure thing. It was reliable and unshakeable, no matter how hard I jumped on it and no matter what I dropped. You can imagine my surprise when I learned about earthquakes. I couldn’t believe that something as strong, solid, and firm as…
The dating scene has shifted significantly in recent years. It’s common nowadays to meet people online through social media or dating apps. Virtual dating allows someone to create a profile that showcases their best qualities. It can include anything from favorite foods to most embarrassing moments. In building my profile,…
Just when you think sickle cell disease can’t get any stranger, it does. Growing up, I had a habit of eating tissue and paper that continued until I was about 15. (I’m really exposing myself here.) It makes sense how such a habit could arise. As babies, we…
Recent Posts
- Japanese agency awards $32M to advance sickle cell treatment to trials
- Intentional lifestyle changes got me through winter without a crisis
- Chicago nurses lead charge to speed up SCD emergency care: Study
- Recognizing the warning signs and symptoms of a sickle cell crisis
- US senators seek 5 more years of federal funding for stem cell program
- Adults with SCD face high risk of stroke in their 30s and 40s, study finds
- Sickle cell doctors face higher burnout than other specialists: Study
- Disease burden heavy for SCD patients in US, despite promise of gene therapy
- The conversation we avoid: Telling children they have sickle cell disease
- New study finds distinct molecular signatures in newborns with SCT