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Previously, I’d never been in a room with more than five sickle cell warriors at a time, and those I’ve met have always been about the same age as me. But last week, I had the privilege of participating in a discussion about sickle cell disease at a National Health…

I was recently on a panel with fellow Sickle Cell Disease News columnist Tito Oye and other sickle cell patients, as part of a sickle cell-focused episode for the YouTube channel Make It Common. It was an amazing experience to participate in this panel and discuss our health…

Yesterday, I was reminded why it’s so beneficial to talk with other people in the sickle cell community. Producers from the YouTube channel Make It Common asked me to participate in an episode about sickle cell disease. They invited five people with the condition, including fellow Sickle Cell Disease…

My therapist asked me, “What does it mean to you to be a ‘masculine man,’ and how does having sickle cell disease impact that meaning?” It’s a question I hadn’t fully considered before, but about the same time I came across a podcast titled, “Unlearn Everything,”…

I was unwell for a week in August. It began with deep lethargy. After about two days of that, the vomiting started. Everything made me vomit: brushing my teeth, drinking water, nibbling food. I went into the hospital after about four days because I was sure I was experiencing…

As a child growing up with sickle cell disease, constant trips to the hospital gave me the perception that the doctors and nurses in charge of my care were superhuman, and they always provided me with quality care. It seemed there was no issue they couldn’t fix. I…

I didn’t reveal that I had sickle cell disease when I started my first job here in the U.K. As a new college graduate, and with the odds stacked against me because I had no previous work experience, I didn’t want my health condition to also affect my employment…

The treatment Adakveo (crizanlizumab) has been made available in the U.K. as the first new therapy for sickle cell disease in over two decades. The aim of Adakveo, which will be available to patients 16 and older in England and Wales, is to reduce the number of sickle…

I have a difficult time knowing when I’m not feeling well apart from when I have a severe illness. That sounds ridiculous, right? Because I have a chronic condition, someone might think I would know when I feel sick. But the irony is that a chronic condition can result in…

Because sickle cell disease affects people differently, I’ve never met two people with the disease who have the same story. A quick Google search can introduce someone to the basics of sickle cell, such as its biology and common triggers, but understanding its differences and the ways it…