I hate when sickle cell disease gets in the way of life, although I feel its effects 24/7. There is no escaping the symptoms, such as fatigue and chronic pain, which are less intermittent than the pain crises. But most times I can live with it, I can…
Iron overload is a side effect that some sickle cell patients suffer from as a result of blood transfusion programs being used as long-term treatment plans. Back in September, I wrote about trying a new medication to address my iron overload problem. For the past two years,…
On Nov. 9, Pfizer and BioNTech announced that their COVID-19 vaccine was found to be more than 90% effective in preventing people from contracting the novel coronavirus. On Nov. 16, Moderna announced their COVID-19 vaccine to have an efficacy of 94.5%. I had zero expectations for…
“Disabled” is not a pejorative, but it definitely felt like one when I was growing up. The U.S. Centers for Disease Control and Prevention defines disability as “any condition of the body or mind (impairment) that makes it more difficult for the person with the condition to do certain…
Recently, I was playing a question-and-answer game with my partner, and one question that came up was, “What message would you like to tell your younger self?” My answer essentially was about prioritizing and measuring my life by the important things. In my younger years, I had a life plan,…
COVID-19 cases are increasing again here in the U.K., and government officials can no longer prioritize improving the economy over protecting people’s health. Instead, they must acknowledge the toll the virus has taken on people and the pressure a high number of cases will place on the National…
I have felt pretty overwhelmed lately. After months of sheltering at home and being relatively inactive, I’ve suddenly taken on a ton of new responsibilities. I’m trying to get into the habit of having a busy schedule again and managing my time more effectively, but sometimes I feel like I’m…
In a previous column, I spoke about some of the things that trigger a sickle cell crisis. This week, I want to share some pointers on how I try to address a crisis in its early stages while at home. Electric blanket I have a heated electric…
One of my favorite features is my smile, and I find that in life, I have many things to smile about. I have very good people around me who provide an amazing support system, I have a home, I have a job, I live in a country that provides…
I share much about my journey with sickle cell disease on social media. I find it to be a handy tool in raising awareness, because it allows me to do so many things. For example, I can share facts about sickle cell disease, as well as details…
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