Columns

I recently watched a film on Netflix called “Strain,” which depicts the life of a child with sickle cell disease. The film mentions that stroke is a symptom of sickle cell, which I don’t believe is widely known. To mark Sickle Cell Awareness Month in September, I have…

When my son was diagnosed with sickle cell disease 17 months ago, I thought constantly about what this might mean for our future. But I don’t think about it much these days, and that’s mainly because he hasn’t had any sickle cell crises or other related pain. Perhaps it’s…

We are in the middle of Sickle Cell Awareness Month, and I can look back on my time as a sickle cell advocate and feel extremely proud about how far we’ve come as a community. When I started raising awareness about sickle cell disease by sharing my…

September always reminds me of preparing for a new school year. It’s been a while since I’ve had to do that, so I have long since fallen out of the habit. However, I have not forgotten the feeling of new stationary or shopping for things to take to college. One…

Sickle Cell Awareness Month is here again! I’m very excited about this one because it’s the first year I can wholeheartedly participate. Last year, I was still struggling to accept my son’s diagnosis, and even though I had announced I would stay strong and do my utmost to keep…

I recently posted on social media about a benefit that London residents with sickle cell disease may be entitled to, and its reception made me both happy and upset. As a Londoner, I’ve been using a disabled persons freedom pass for years. Provided by the U.K. government, this…

When a sickle cell patient mentions a crisis, most people think of a painful, vaso-occlusive crisis. I can understand why — it’s by far one of the most common complications of sickle cell disease. However, it’s not the only complication that can occur.  One day when I was…

As August draws to a close, so does the end of summer. September brings a new season and a fresh start. It is also Sickle Cell Awareness Month — a time to get involved and spread knowledge about sickle cell disease. But as someone with the condition, I’m exposed…

In September, I celebrate two years since my last serious sickle cell crisis and hospitalization. I’m so happy to be in this position, because I don’t take my health for granted. I know how bad sickle cell can get, so the fact that I’ve stayed healthy for so…

The word “crisis” is probably the most accurate term for what happens when pain kicks in from sickle cell disease. The dictionary definition of a crisis is “a time of intense difficulty or danger,” and that’s exactly what happens during a sickle cell crisis. When I have one, it…