Clean freak, germaphobe, OCD, finicky — these are some of the terms that people have used to describe me from a very young age. I can see why, and I think that anyone who spent a significant part of their childhood in the hospital will understand, too. I picked…
Columns
One of the best feelings in the world is cutting a hospital bracelet. Cutting a hospital bracelet can symbolize a fresh start. You’ve been discharged from the hospital. You are feeling like the best version of yourself — happy, relaxed, optimistic, and ready to prove that sickle cell can’t keep…
Sometimes I wish sickle cell anemia was visible. I wish people had X-ray vision and could see how my cells struggle to course through my veins. If people could see the damage that sickle cell anemia causes, I’m certain that life would be easier. Instead of constantly apologizing to…
Ed. note: Welcome to the new column, “Her Sickled Journey,” by Tito Oye. Living with sickle cell anemia means that you have unknowingly agreed to a lifelong role of teaching. Many others are unaware of the challenges faced by those with the genetic disease, so we’re responsible for making it…
Recent Posts
- Birth control is safe, with low risk of clots, for women with sickle cell: Review
- Chronic pain means greater disability for young people with sickle cell: Study
- Managing depression while living with sickle cell disease
- Screening tool identifies developmental risks in young children with SCD: Study
- Having my first MRI brain scan reminds me to keep advocating for myself
- Evaluating my options for treating sickle beta-zero thalassemia
- Researchers aim to repurpose diabetes drug to treat SCD kidneys
- Alzheimer’s drug memantine may help prevent SCD crises, especially in kids
- Red blood cell breakdown may drive cognitive problems in SCD
- Looking back at the 5 worst sickle cell crises of my life