News

December 4, 2018December 4, 2018

Delayed Hemolytic Transfusion Reaction Can Lead to Poor Outcome in SCD

News

Hemolytic transfusion reactions, a serious complication of red blood cell transfusion, can be difficult to diagnose in patients with sickle cell disease and even be misinterpreted as severe vaso-occlusive ... Read more

November 27, 2018November 27, 2018

Novartis Announces Funding for Projects Aimed at Supporting Sickle Cell Disease Community

News

For this year’s Solutions to Empower Patients (STEP) program, global healthcare company Novartis has announced it will fund up to five original and creative ideas to help sickle cell ... Read more

November 20, 2018November 20, 2018

New Tool Helps Primary Care Physicians Provide Better Care for SCD Patients, Study Shows

News

A new clinical decision support-based tool can help primary care physicians improve the care and management of patients with sickle cell disease (SCD), a study reports. The study, “Effectiveness of ... Read more

November 13, 2018November 13, 2018

School Staff Lacks Knowledge about Sickle Cell Disease, Student Survey Finds

News

Students with sickle cell disease (SCD) feel that educators and administrators at their schools lack knowledge about SCD management — an issue that could be addressed by developing a ... Read more

November 8, 2018November 8, 2018

Phase 1 Trial to Test Under-the-Skin Injection of Sevuparin in Sickle Cell Patients

News

Modus Therapeutics is going to launch a Phase 1 clinical study in the United States to evaluate the potential of its lead candidate sevuparin for the treatment of sickle ... Read more

November 1, 2018November 1, 2018

Virtual Reality Program May Provide Effective Relief From Pain for SCD Patients, Study Suggests

News

A virtual reality program designed to provide a distraction from pain may be an effective complementary therapy for children who are hospitalized for a sickle cell crisis, a study shows. ... Read more

October 30, 2018

#NORDSummit – Major Issues on Table for Rare Disease Patients in US as Midterm Elections Approach

News

With the U.S. midterm elections now less than two weeks away, patient advocacy groups are solidly focused on a range of hot-button issues, from the Orphan Drug Tax Creditand ... Read more

October 30, 2018October 30, 2018

Emmaus-sponsored ASCAT Conference Outlines Latest Sickle Cell Advances

News

Healthcare professionals, scientists and field experts learned about the latest advances in the diagnosis and treatment of sickle cell and related disorders at the 12th Annual Sickle Cell Disease and ... Read more

October 25, 2018October 25, 2018

HemoType SC is a Fast, Inexpensive Diagnostic Tool for Sickle Cell Disease Screening, Study Shows

News

The diagnostic test HemoType SC is a viable option for the highly sensitive, specific, inexpensive, and rapid diagnosis of sickle cell disease, a large multi-center study shows. The test can ... Read more

October 23, 2018October 23, 2018

Marijuana Use Common in Sickle Cell Patients, Highlighting Need for More Research, Study Shows

News

Many sickle cell disease (SCD) patients use marijuana for its medicinal benefits, according to an anonymous survey by researchers from Yale New Haven Hospital and Yale University. These results show that there ... Read more

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