38 and counting: Thriving with sickle cell disease
How I'm moving forward with strength despite symptoms and complications
As I prepare to celebrate my 38th birthday on Oct. 18, I find myself lost in thought, reflecting on the incredible journey that has brought me to this milestone. Over the years, I’ve survived with flying colors after all the complications that sickle cell disease has thrown at me. My life has been one of hope, strength, faith, pain, resilience, love, challenges, and triumphs.
Today I’m choosing to reflect on my story and highlight the factors that have contributed to my success. As I clock 38, my new age, I celebrate my triumphs and honor all of my experience.
I remember being a naive little girl who was clueless about her health, especially since my parents didn’t disclose my diagnosis until I was 11. I’m the only child with sickle cell disease out of five. I was different, and my health struggles were different from those of my siblings. That led to my endless questions about why I required constant medication, questions that were met with unsatisfactory answers. Eventually, my increasing number of health issues prompted my mother to reveal my diagnosis, which empowered me to understand and take better care of my health.
Accepting that I had sickle cell was crucial. Unlike many who struggle with it because of stigma and others who remain in denial, I, surprisingly, found acceptance within a day. Upon hearing the news, I allowed myself a few minutes of tears, followed by hours of introspection. Then determination kicked in: “I have sickle cell. So what? I’ll fulfill my purpose regardless.” My mom’s reassurance helped, instilling confidence that I could overcome any obstacle, including sickle cell. This shift in mindset was liberating.
My self-love and confidence came in handy as I came to terms with my condition. Educating myself about sickle cell disease empowered me to take charge. I adopted a positive mindset, celebrating achievements no matter how small and recognizing my worth beyond the illness.
Good medical care has been instrumental, as well. Visiting clinics regularly, understanding my triggers, and adhering to medication have significantly improved my well-being.
That said, prioritizing my mental health is one of the reasons I’m here at 38. Sickle cell can be so challenging physically that many patients become overwhelmed and forget to pay attention to their mental well-being. Since my early 20s, I’ve learned to focus on maintaining my happiness, and it’s improved my quality of life. I’ve realized that my mental health has a direct effect on my physical health. Overall, it’s been a game-changer.
Sickle cell challenges intensify with age. I’ve faced painful crises, chronic fatigue syndrome, cardiomegaly, depression, avascular necrosis, infections, bone issues, physical disability, and other complications. However, I’ve developed a strong sense of resilience and a never-give-up attitude. Each challenge became a chance to learn, grow, and discover my inner strength. I’ve emerged stronger, as a true sickle cell warrior!
Throughout this time, the support of my family and friends has been invaluable. They’ve stood by me through thick and thin, providing emotional strength and encouragement. They’re why I’ve made it to this point, and they’ll forever have a special place in my heart.
Finding purpose
Having a life outside my sickle cell diagnosis has been vital, too. I’ve found purpose in medicine, which I studied along with surgery. I’m now a physician who cares for the sick, and that purpose fulfills me.
Beyond patient care, I’m also an award-winning sickle cell advocate and educator, devoted to helping others through my nongovernmental organization, SickleLive Foundation. I’ve also created an online Sickle Cell Celebs support group.
Balancing work and play keeps me energized. I relax by spending time with my family and watching tennis and TV. These passions fuel my resilience. And lifestyle modifications, including eating healthy, managing stress, sleeping adequately, and prioritizing hydration, have significantly improved my health and emotional well-being.
One of the most critical factors contributing to my success is my faith. God has been my rock and empowered me to face sickle cell’s challenges with a positive mindset. In my darkest times, my belief in God has brought comfort and solutions.
I’ve learned to thrive, not just survive, as a sickle cell patient. Thriving at 38 is a testament to my resilience, strength, purpose, family support, faith, and physical and mental healthcare. I hope others with sickle cell can find inspiration in my journey as they embrace their own path, focus on their holistic healthcare, surround themselves with supportive loved ones, and recognize their worth and potential.
Note: Sickle Cell Disease News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Sickle Cell Disease News or its parent company, Bionews, and are intended to spark discussion about issues pertaining to sickle cell disease.
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