How I advocate for my health needs while traveling for work

Having a remote job has been a game-changer for me as someone with sickle cell disease. I’m better able to manage my health — no rushed mornings, cold commutes, or physical strain. I can plan my day to suit my body, whether that means resting, going to the gym, or pacing my energy. These small adjustments have made a huge difference.

However, my role also requires me to travel more to meet with clients, share our work, build relationships, and represent my company. I’ve always loved traveling, but I’ve had more than my fair share of medical mishaps while away from home. Now, I must approach it with caution.

Traveling with sickle cell disease increases my risk of dehydration, low oxygen levels, fatigue, and aches, all of which can trigger a crisis. Every work trip requires planning, and advocating for myself is essential.

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Travel accommodations

When attending a conference, I don’t fly in and start working right away. I request to travel early to allow time for rest and recovery. For short trips, I arrive the day before; for long-haul trips, especially across the Atlantic, I give myself a few days to adjust.

Initially, I worried about seeming difficult or different. But these adjustments help me do my best. Meeting my body’s needs keeps me present and focused, and helps me feel less anxious about my health. These aren’t special favors; they’re practical accommodations that enable me to succeed.

Along with advocating for myself during travel, I’ve also had to rethink how I view the costs. My company covers an economy ticket, but I pay to upgrade on long flights. This once seemed like a luxury, but for me, it’s about prevention. I’m over 6 feet tall, meaning standard seats can be physically taxing. Even when I hydrate and move around, I still experience swelling and discomfort after long flights. While upgrading my seat is an added expense, it reduces my crisis risk and shortens recovery time. I see it as an investment in my health and performance.

I’ve been open with my company about sickle cell and its impact. In return, they support me and invest in my growth. I’ve advanced in my career and taken on more responsibility. My condition never defines my work. But I know being open about a chronic condition isn’t easy. There’s a real fear of being judged, underestimated, or seen as less capable. For me, though, choosing to disclose my illness was one of the most important decisions I’ve made. It’s had a positive impact on my career, creating an environment where I can succeed — not in spite of my condition, but alongside it.

Living with sickle cell doesn’t limit what I can achieve; it challenges me to find new ways to succeed. With transparency, understanding, and courage, I’m not just surviving — I’m redefining what’s possible. Every journey is a chance to show that obstacles can fuel excellence.

Note: Sickle Cell Disease News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Sickle Cell Disease News or its parent company, Bionews, and are intended to spark discussion about issues about sickle cell disease.