How I find the silver lining while living with sickle cell disease

As most of us know, sickle cell can be a debilitating disease. I’ve been diagnosed with it since I was 18 months old, yet it still causes me much pain, agony, and difficulty. I have trouble making plans, enjoying an active social life, and exercising, and it’s even caused me to adjust my career. My life with sickle cell has included much strife and hardship.

But for this Sickle Cell Awareness Month, I wanted to speak on some ways I’ve benefited from the disease. I know, the cons far outweigh any pros with this condition. But I’m a “silver lining” type of person, one who tries to search as deep as possible to identify the good in any situation.

My silver lining

Foremost among those benefits is the resilience I’ve gained from this chronic condition. It takes a lot to knock me out of my usual optimistic outlook, and even when a lot seems to be going wrong at once, my mental fortitude usually helps me navigate my way through it and bounce back quickly.

Recommended Reading

August 17, 2023 News by Mary Chapman

New app for sickle cell disease helps patients manage pain

Moreover, because sickle cell has a habit of doing what it likes regardless of my plans, I’m able to look ahead and adapt, ensuring I can handle any potential hiccups from the disease. This skill has proven to be a huge advantage in my professional life. It’s helped me build strong, well-rounded teams that aren’t stopped by a single point of failure. It also helps my social life when I’m planning big undertakings, such as a holiday abroad.

The ability to empathize is another benefit I’ve gained during my time with sickle cell. After all, my sickle cell crises have taught me how quickly life can turn upside down — and how little control any of us have over our circumstances. When I encounter others who may be down on their luck, I never judge. Instead, I’m able to extend them genuine empathy.

This quality is appreciated in my relationships, and people feel comfortable coming to me for advice. My down and difficult periods with sickle cell have taught me to be grounded by the seemingly mundane. This perspective feeds into my advice and helps me offer a completely different perspective.

Further, I’ve learned the value of independence. That quality yields other benefits; it lets me do my best to maximize my time and opportunities, for instance. I also try to make life as enjoyable as I can because I know that at any point — due to no fault of my own — I could be huddled up in hospital or restricted in what I can do.

Through facing my own mortality, I’ve begun to appreciate how finite our time is. Thus, I make the most of the time I have by building great relationships, capitalizing on opportunities, and having as much fun as I can without worsening my circumstances.

Correspondingly, sickle cell has helped me appreciate life. I typically stay grateful no matter how seemingly small the blessing is. As I’ve experienced the physical, psychological, and medical trauma of sickle cell, somehow I’ve learned to appreciate all simple, basic, and normal pleasures.

Asserting the positive

Now, don’t get me wrong. I’m not saying for a second that I enjoy the pain and trauma sickle cell causes. But I do believe that my trials have helped make me a better person, and for that I’m glad.

I hope this column doesn’t sound like I’m tooting my own horn. In my defense, I was inspired to write this piece by a conversation with my sister, who mentioned the benefits I cite. They seemed to go with this month’s special observance, when I want to emphasize the realities of my life with sickle cell. And some of those realities really are that positive.

Note: Sickle Cell Disease News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Sickle Cell Disease News or its parent company, Bionews, and are intended to spark discussion about issues pertaining to sickle cell disease.