Forum Replies Created

  • Michele Roberts

    Member
    October 30, 2022 at 7:16 pm in reply to: How much water do you drink daily?

    Not nearly enough.   My average intake is 54 oz.

  • Michele Roberts

    Member
    September 5, 2022 at 5:55 pm in reply to: Hiding your condition

    I did for years.  Now that I have lived a long time I am grateful to be here.   I was labeled the sickly one as the only child of 7 with SCD.   I did not want the questions or fear that I sensed from my mom.

    I still do not share much except when the opportunity presents itself.

  • Michele Roberts

    Member
    September 5, 2022 at 5:49 pm in reply to: Managing Extreme Heat with Sickle Cell

    When I was young my mom said I was allergic to the sun; she had no clue why I got sick.  Now, as an adult I do early morning walking and later, before dark, going out.  I work indoors and stay hydrated.

  • Michele Roberts

    Member
    June 3, 2022 at 1:10 pm in reply to: What helps you when you’re stressed?

    I work out daily.   Everything is low impact and plenty water.  As much as I love the heat, working out till I sweat dehydrates me very quickly.  I stop before sweating.   Small burst throughout the day.  I manage stress very well.