The past few weeks have been extremely difficult — heartbreaking, even. Here in the U.K., I’ve seen two recent reports about sickle cell patients dying from negligence. Both of their deaths were preventable. As MyLondon reported in September,…
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Last Monday, I awoke to a flurry of comments about the results of a landmark sickle cell inquiry here in the U.K. that uncovered evidence of racism in sickle cell patient care in the the public healthcare system.
I wrote about feeling unwell without any apparent cause in September, and then again last month. So, guess what? I was recently sick again. But in my quest for silver linings, I should stress that I think…
I was unwell for a week in August. It began with deep lethargy. After about two days of that, the vomiting started. Everything made me vomit: brushing my teeth, drinking water, nibbling food. I went into the hospital…
I have a difficult time knowing when I’m not feeling well apart from when I have a severe illness. That sounds ridiculous, right? Because I have a chronic condition, someone might think I would know when I feel sick.
I recently watched a film on Netflix called “Strain,” which depicts the life of a child with sickle cell disease. The film mentions that stroke is a symptom of sickle cell, which I don’t believe is widely known.
When a sickle cell patient mentions a crisis, most people think of a painful, vaso-occlusive crisis. I can understand why — it’s by far one of the most common complications of sickle cell disease. However, it’s not the…
Today is my birthday. When I was born, the life expectancy of sickle cell patients in the U.K. was 10 years old. It was worse in Nigeria, at 5 years old, which is why my family and I remained…
People often tell me that I make living with sickle cell disease look easy. It is not. Whenever people make these types of comments, I always think that because I was born this way, I don’t know any other…
Most COVID-19 restriction laws were lifted in England on July 19. This includes mask requirements, social distancing rules, work-from-home guidance, and the rule of six, or the maximum number of people allowed at a social gathering. July 19…
One of the many stereotypes of British people is that we can be extremely reserved. In many places in the world, it is common for people to greet one another on the street each morning. This is rare in…
World Sickle Cell Day is upon us tomorrow, June 19. Following are memories that illustrate sickle cell’s ugly grip on my reality. *** The year was 2018 and the British Society for Haematology Annual Scientific Meeting…
One of the most annoying things about sickle cell disease is that a hospitalization can occur with very short notice. I might be fine one moment only to become severely ill the next, often without any heads-up from my…
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