First in a series. Love and relationships can significantly affect the lives of people with sickle cell disease. A good relationship can contribute to improved mental and physical health, while a bad relationship may lead to the opposite. Unfortunately, finding love can be challenging for people with sickle cell,…
The Sickle Cell Crusader — Oluwatosin Adesoye
Adesoye Oluwatosin is a practicing physician, a passionate and award-winning sickle cell advocate, and educator. She’s the founder of Sickle Cell Celebs, an online community for people living with sickle cell disease, and of Sicklelive Foundation, an NGO that caters to people living with sickle cell disease. She’s a Nigerian diagnosed with sickle cell anemia (HBSS) in 1987 when she was just 1 year old. She enjoys using her personal and medical experience to educate and create awareness about sickle cell disease and also help reduce health inequalities in its management. She’s called “The Sickle Cell Crusader.” Her column promises to be expository, educative, and compelling.
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Recently, I doubted I’d be able to write this column. My knees had become swollen, immovable, and painfully untouchable. The slightest movement sent sharp pain through my body. Just sitting up was difficult, let alone writing. The episode began with malaria, which I had treated the previous week. Soon after,…
In 2006, the World Health Organization recognized sickle cell disease as a global public health problem. Sickle cell is not just a genetic blood condition, but a multisystem disease that can damage organs and shorten life spans. Moderate or severe forms can be especially virulent. While some…
It took me a while to realize that intense emotions can lead me to a sickle cell crisis. Most of my health professionals never mentioned it when educating me about crisis triggers. From what I’ve learned as a physician, emotional triggers aren’t researched or documented enough. Hence, the…
Chronic diseases and pain can sometimes take away one’s happiness. They are proven predisposing factors for depression. In my case, sickle cell disease has been challenging. Living with frequent acute pain episodes, chronic pain, and numerous sickle cell complications can easily snuff out your happiness, especially…
I often hear a fascinating question among those living with sickle cell disease, sickle cell advocates, parents, caregivers, etc. — “Can sickle cell disease affect our goals and career choices?” — and I usually find some of the answers as interesting as the question. I’ve heard answers like,…
From my experience, pain is one of the hallmark symptoms of sickle cell disease. In fact, it is its trademark. Unsurprisingly, the translation of sickle cell disease in my Yoruba language is “aro’moleegun,” which denotes “bone pain.” If you have moderate to severe sickle cell disease, pain is…
“I have another patient with sickle cell disease, but she’s not affected as severely as you. What’s wrong with you?” “This person has your same genotype. Why isn’t she experiencing the same sickle cell complications as you are?” “I know a sickle cell warrior who can do this…
“I have sickle cell disease. So what?” That was my reaction as an 11-year-old girl about 24 hours after I learned I had sickle cell disease. Even though I had the disease, I was still the best student in my class and had a lovely family. Apart from…
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