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Fatigue is a common symptom associated with sickle cell disease. Due to the smaller size of our red blood cells, we cannot carry as much oxygen as those with healthier red blood cells. This leads to a lack of oxygen in our bodies and, ultimately, fatigue. Fatigue describes the feeling…

Living with sickle cell disease is not easy. It affects every area of one’s life. An important part of managing the challenges that come with the disease is having a solid support system. I do not have any close friends with sickle cell, but I…

My hospital also is a university full of medical students. Trainees follow their supervisors from patient to patient to get a sense of how their work applies to real-life situations. Nine times out of 10, I love interacting with students. I love to discover the person behind the uniform, and…

For most of my life, I hid the fact that I have sickle cell disease. People only knew about my health if they needed to know. In other words, the only ones I could talk to about it were my immediate family members and doctors. This was not ideal growing…

We were nearing the end of a biology lesson. In an attempt to excite the class for the next lesson, my teacher put up a slide that read, “Why people with sickle cell die young.” I froze. I knew that the topic would come up eventually, but I did not…

Sickle cell disease is a condition that mostly affects people from an African or African-Caribbean origin. Nevertheless, the majority of those who have treated me for this condition have been healthcare professionals of other races. I don’t think they would have typically interacted with sickle cell patients prior to…

I previously shared some tips for managing sickle cell. If you found those useful, I have a few more suggestions that also may help. Deep Heat I find that when I am in pain, balms such as Mentholatum Deep Heat help. Balms that contain ingredients such as menthol…

Whenever I feel ill, I exhaust my options. To make my sickle cell pain go away, I drink hot water, take painkillers, fill my hot water bottle, find a distraction, or sleep. Most of the time it works, but sometimes the pain is so bad that I call 999…

The manner in which technological advances have changed the way we live is nothing short of amazing. So many free applications exist to help us with every aspect of life, from shopping to studying, and from cooking to entertainment. If we can use apps for all of this and…

Living with sickle cell disease presents many challenges. Whether I’m at home or traveling, I need to make adjustments to ensure that I’m prepared if a vaso-occlusive crisis should strike. Here are some things that help me manage my life with sickle cell disease: Hot-water bottle: This everyday…