5 tips for fatigue management for sickle cell caregivers

One key to cultivating resilience is self-care

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by Sylvia Amuta |

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In my previous column, I explored the overwhelming emotions and fatigue I experience as a caregiver to my young cousin with sickle cell disease. However, I didn’t share the invaluable strategies I’ve developed to cope with these challenges. Today, I aim to shed light on the methods I’ve cultivated to navigate the turbulent waves of exhaustion.

There are moments when the weight of numerous responsibilities bears down on me, and I long for relief from this constant burden. Yet, reality reminds me that completely escaping these obligations is an unattainable feat. Instead of seeking an elusive respite, I’ve discovered that the secret lies in creating personalized strategies to confront stress head-on.

While some stressors can be lessened or diminished, others remain beyond our control. This truth resonates deeply with the resilient individuals like me living in Lagos, Nigeria, where stress has become woven into the fabric of daily life. From enduring endless traffic jams and confronting impatient drivers on bustling roads, to balancing a demanding career and meeting the ceaseless needs of my own children, all while shouldering the responsibility of caring for my cousin, these responsibilities are undeniably overwhelming. Consequently, I’ve embarked on a journey to discover methods to release pent-up tension and prevent myself from succumbing to the weight of it all.

While I don’t claim to possess the ultimate arsenal to combat caregiver exhaustion, I have found a collection of routines and strategies that have proven immensely helpful in managing my own fatigue. These strategies extend beyond the realm of caregiving and can be applied to confront exhaustion in various aspects of life.

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A recent trip reminded me how unpredictable sickle cell can be

1. Embrace the power of self-care

Self-care is the foundation of resilience. Prioritizing your physical and mental well-being allows you to replenish your spirit and approach your caregiving duties with renewed energy. Engage in activities that bring you joy and relaxation, whether it’s indulging in a beloved hobby or immersing yourself in a captivating book. Personally, even small acts like treating myself to a pampering pedicure or dedicating time to the gym have proven transformative. Remember, your ability to give your best is directly linked to your own well-being.

2. Foster connections and seek support

It’s crucial to recognize that the challenges of caregiving need not be faced alone. Reach out to friends, family members, or support groups who can provide a sympathetic ear or lend a helping hand when the burden becomes too heavy. Previously, I hesitated to relinquish control and seek assistance, fearing that I would inconvenience others. However, I came to realize the immense value of family support. For instance, my sister frequently offers her help in caring for my children, and those moments of respite have proven immeasurably rejuvenating.

3. Avoid overextending yourself

It’s important to be seen as strong, but not at the expense of your physical or mental well-being. Learn to say no when necessary and delegate tasks to capable and willing individuals, allowing yourself the precious gifts of time and energy. In the past, I would often take on excessive work to please everyone, only to realize that I couldn’t please everyone and that I should prioritize my own well-being. Hence, I started delegating and turning down tasks, so I was managing a reasonable amount of work pressure that wouldn’t overwhelm me. Remember, it’s not just acceptable but essential to prioritize your own well-being.

4. Cultivate stress-relief techniques

Explore the vast realm of stress-relief techniques and discover practices that resonate with your soul. Dive into deep breathing exercises, meditation, yoga, or physical activities like invigorating jogs or rhythmic dances. Personally, I find solace in short yoga videos found on YouTube, and they have become a vital part of my routine. The key is to find what brings you serenity and make it an integral part of your daily life.

5. Seek support through communication

If the weight of exhaustion persists, don’t hesitate to talk to someone or seek the guidance of professionals like therapists or counselors. Sharing your experiences, concerns, and emotions with those who understand can provide a cathartic release and a reassuring sense of validation. Personally, I found that conversing with friends who were also experiencing their own stress in life was therapeutic. We would exchange stories, provide comfort, and offer helpful tips to one another.

In conclusion, managing exhaustion and stress as a caregiver is an ongoing process. Each person’s experience is unique, and what works for one may not work for another. Therefore, it’s imperative to discover the strategies that resonate most profoundly with your being. Cultivate patience and self-compassion, for you are a remarkable individual engaged in an extraordinary endeavor. Remember, tending to your own well-being is as vital as caring for your loved ones.

Note: Sickle Cell Disease News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Sickle Cell Disease News or its parent company, BioNews, and are intended to spark discussion about issues pertaining to sickle cell disease.


Chibueze avatar


Sylvia provides valuable insights and practical strategies for caregivers to manage exhaustion and stress. Her personal experiences and challenges as a caregiver in Lagos, Nigeria, makes her advice relatable and applicable to caregivers in various contexts. The emphasis on self-care as a foundation for resilience is crucial, highlighting the importance of prioritizing one's physical and mental well-being. The suggestions to embrace activities that bring joy, seek support from friends and family, set boundaries, and explore stress-relief techniques are all practical and effective approaches to combat caregiver exhaustion. The inclusion of personal anecdotes adds authenticity and makes the strategies feel tangible and attainable. Overall, this column serves as a valuable resource for caregivers, reminding them of the significance of self-care and offering practical guidance to navigate the demanding role of caregiving while preserving their own well-being. Well done Sylvia


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