Being a caregiver to someone with sickle cell disease isn’t a role anyone can truly prepare for. It’s a calling that finds us, and it stems from love, loyalty, and necessity. My caregiving journey began with caring for my cousin, a vibrant, witty, and spirited soul whose strength…
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One of the more annoying parts of sickle cell disease is its unpredictable nature. One day, you think you understand the illness and how it affects your body. The next, sickle cell demonstrates that it’s the boss by throwing a massive curveball your way. When faced with a curveball…
As I mark four years of writing for Sickle Cell Disease News, I find myself reflecting on the journey with a deep sense of gratitude and humility. It’s incredible to think back to when I started. I was unsure of what I’d write about week after week, and yet…
World Sickle Cell Day took place on June 19, and one of my experiences that day prompted me to write about what it means to me. That day, I saw an ongoing debate by sickle cell warriors regarding the significance of the day and wanted to weigh in. On one…
I’m writing from the heart of the EHA2025 Congress, hosted by the European Hematology Association (EHA), in Milan, Italy. I’m surrounded by leading experts, researchers, and, most importantly, fellow patients who understand what it’s like to live with sickle cell disease. Conferences like this aren’t just for clinicians…
In honor of World Sickle Cell Day, held June 19, I would like to highlight some incredible U.K.-based organizations I’ve had the pleasure of working with recently. These groups are not only changing the narrative of what it means to live with sickle cell disease, but they’re also challenging…
Sickle cell disease (SCD) is a dynamic condition that affects people differently. Its symptoms and complications are evident in some patients from childhood, while in others, it may be silent or asymptomatic. There is a common misconception that every child who lacks obvious symptoms or has an “asymptomatic”…
I was recently discharged from the hospital after experiencing a severe sickle cell crisis. It was one of those episodes that lingers. The kind that leaves you grappling not only with physical pain, but with the discomfort of uncertainty. Perhaps it’s due to my professional background, but I have…
Malaria remains one of the most common triggers of sickle cell crises in patients living in malaria-endemic regions, while sickle cell disease (SCD) also predisposes patients to frequent malaria infection. As a result, malaria prevention has become one of the mainstays of SCD management in these areas. Malaria…
Living with sickle cell disease is no small feat. It’s a condition that comes with a host of symptoms, complications, and issues that are unpredictable and span a lifetime. When people think about sickle cell disease, the most commonly known symptom is the vaso-occlusive crisis, also…
Recent Posts
- Sickle cell drug at high dose eases anemia symptoms in severe SCD
- Researchers urge more talk on menstrual pain in sickle cell clinics
- Sickle cell patients shifting to adult care visit ER more often: US study
- Early results of trial testing tebapivat in SCD expected later this year
- Gathering new evidence helps me tackle my fears with sickle cell
- Differences in red blood cell stiffness may explain variations in SCD severity
- Don’t let sickle cell pain crises keep you from setting goals
- FDA awards breakthrough device status to sickle cell diagnostic test
- Blood screen may spot potential complications in sickle cell children
- The good and bad of being a medical doctor and a sickle cell disease patient