Kassem Banawer
Forum Replies Created
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For me Tito during pain management period if i can set there are many things can distract me like watch movies or playing games or reading , but if i’m still in pain nothing can distract me in this case i need to take rest and sleep until the pain cool down.
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@Michael now i’m playing the COD Warzone 2.0 on my PC, it’s still new release and i see that game is good to play with friends which having lots of fun and isolation of bussy world
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I don’t think @Michael i can do anything during my hard crisis because my pain completly control all my body even if you take a good pain killer you have to take rest or i will face more pain, at the end the crisis make my body out of control that because should be someone close to you and take care for your responsibilities like my wife of any person close to me, with respect to work sure i have to take a sick vacation.
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I’m same @Michael when leaving stress world of work and responsibilities just goes to my private world like playing online games with my friends watching movies eating light snacks and I love to be quiet sometimes like drop my mind into empty space no sound no noise no electronic devices nothing just me and my empty space shshshshsh so quiet just imagen yourself in a deep space nothing around you this is my favorite moment run away from earth.
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Breakfast @Michael is the most important meal of the day because it’s the starting power of your body engine, for me sleep is the most thing I really want doing more, my sleep rate is not enough its only 5 to 6 hours maximum during work days, I’m sure I need more because I feel tired most of the time.
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there is no racism like this where i live, it would be very bad really.
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No problem @viviane its ok I totally understand that some of people can’t feel your pain but as you said hope all go well in the future.
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I hope @viviane hospitals follow procedures which should be registered in our profiles mentioned that we are SCD patients so we need special care and our admission would be more easy, at least if your crisis is high you have no choice you need an opioid dosage or you will get heart attack like what happened to me once because I had a high level of pain in that day my heart start to corrupt the pulses, last time before my admission I stay awake all night from 6pm until 7am morning just because they didn’t gave me the correct dosage of morphine, I hope this procedures come direct from ministry of health and attached to our profiles in hospitals.
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yes sure @Michael my advice to carers (just give me my morphine dosage and i will be fine) hehehehehe LOL
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yes @Tito I don’t like to go hospital but some of high-level crisis can’t be handled at home so as you said to make my stay conferrable, I should take my personal items like light pajamas and lots of underwear also my electronics like phone charger.
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Usually in winter season i don’t like heat direct on my body or heavy thinks over me or even electric blanket sheet on my bed this make my sleep uncomfortable, i think you can use this blanket if your bedroom is not warm enough so you can make the bed warm it’s a very good idea, but for me i have like the down below wall heater which i bought recently i can program the temperature at degree that i want and just leave it, {but be sure not to ask about the electricity bill LOL}, so after almost one hour the bedroom become warm and just you need light pajama only and light blanket no need for heavy blanket or clothes.
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thanks @tito
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For me I can’t start my day if I didn’t take my breakfast which is very important to me as lunch should be intime also dinner in time, 3 moderate meals every day, this is my routine, but sometime if I late to lunch, at night i will eat some fruits or salad.
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Usually, I’m not taking enough time for sleep during working days about 5 to 6 hours maximum but at weekend I’m taking much time about 9 to 10 hours sleep, I know that’s is not perfect sleep routine, I can’t sleep early every day.
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It’s Good to hear that @Ada, God bless you.
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Nop, not really, but I will be little afraid from this trial and I don’t know how could be the effect of the new medicine on my body.
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Usually, I need to transfusions the blood during my strong crisis because my blood become very low but the problem that I’m facing every time, my Ferritin storage become higher and higher like 1500 mg/l which make the doctor gives me medicine to control this level, do anyone face this issue before when exchange the blood?
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i don’t have friends with SCD but i think it would be more better if i have, to share all my worries and concern with him.
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I think the living cost become more high everywhere @Michael, in case for me i prefer to pay more money just to keep my home warm.
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@Michael Yap That’s it,
I like routine and it’s not bothering me in anyway.
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Actually I didn’t takeout my mask even in where i live they canceled the corona virus procedure but I still wear it everywhere, at the beginning of Autom now and like every year I will take the seasonal vaccine, its normal protection procedure for me every winter season and I have to take care more about protection especially infection from anyone around me in work and everywhere, that’s it and just continue my life as usual.
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That’s great @Michael it’s so nice to make a great memory for someone who we love, god bless your mum, I wish her a beautiful days with a nice memories, I think she’s grateful to have son like you, always take care for her, through her we can see the world more beautiful, for me the summer was very hot, I think the temperate reach 55 and more, i sent it with eat, sleep, work and eat, sleep, work and eat, sleep, work and so on.
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Yap that’s right thanks god for that.
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God bless you @Tracy hope you can find a cure for that, i didn’t face this before, really sorry.
